LINKS TO OTHER RESOURCES
From talking to parents, we know that there are many other issues to deal with when you have a child with a long term illness or serious medical condition. Unfortunately not all these issues can be resolved through the medical teams but here we can point you in the right direction to get the right information and advice to ease the pressure on yourself and also make sure you get all that your family is entitled to. Here are links to some sites we thought you may find useful and also printable versions of the booklet on short bowel syndrome and all other medical reports that are published to this site.
Advice on Benefits or Citizens Advice
Royal Manchester Children's Hospital website
Bladder and Bowel Community
For lots of help and information an continency and for a ' Just can't wait' card which can help get access to toilets not usually open to the public.
Help and information for families with babies born too soon, or too sick.
Are the UK’s largest provider of grants to low-income families raising disabled and seriously ill children and young people.
For Free From Foods
Recipes and ideas for foods your child may want to try (always check recipes with your dietion first)
Sore Bottoms due to incontinence
Try 'Proshield' foaming cleansing spray and protective cream.
For Suppliers of Parenteral Nutrition and Equipment(Giving sets)
Tel: 0800 121 8300
For suppliers of all milk products and medical equipment.
Tel: 0808 100 1990
Finding it difficult to cope?
In need of respite care? Contact you Family Support Worker or the Hospital and ask to be refered to your local children's hospice like Derian House. A hospice can offer short-term care while you take time to catch your breath!
or for support at home contact: Rainbow Trust Unit 9, Building 9 Tameside.
Information on a range of gluten-free products and advice is available from: JUVELA and includes a complete prescription range for varied and enjoyable gluten-free diets. Contacts for them below:
Freephone: 0800 783 1992
Write to: 19 De Havilland Drive, Liverpool L24 8RN