It's good to know we are not alone in our struggle to find the most up to date information on Short Bowel Syndrome and it's effects on the child and the family. SBS affects children all over the World and we are constantly in search of better treatments.
We now have links to an Italian website. 'Un filo per la vita' is an organisation which has the same aims as our own. They have been in existence for more than 7 years.
Have a look at their website at:
Just click on Google Translate if you don't speak Italian!
We have also been invited to join with a Short Bowel website in Lincoln, Nebraska, USA. Andy Jablonski is the Chief Executive Officer(CEO). He was born with SBS and is working hard to improve awareness of the condition by providing information and support for other sufferers of SBS. You can read his story on line at:
You can also chat to Andy on our Facebook site - just click on Facebook on the 'Home' page.